We don't need to go back to see the cardiologist until Feb of next Year......

So how exciting is that?? We had an appointment this past week and we did a chest x ray and vitals of course.

Dr. Kavanaugh was really happy with her.. her Heart still doesn't pump or squeeze as well as she wanted it to be but she wants to give her Heart some time to recover from all the work it was doing before with pumping blood threw the small shunt.... with the Glenn Operation a Hugh amount of work was taking of her Heart ...so hopefully we will see some improvement within the next 6 month!! Also for now... Nadia is of the tube..we had some big issues with her gaging all the time and spitting up... then on night i said NO MORE!! I took the tube out and said to Nadia " You can do it without the tube"...

It was really hard for the first few nights because i had to wake up every 1 -2 to feed her because she was just taking 30 - 50 ml at a time...

during the day i feed her with the spoon and at night she doesn't have a problem sucking the whole bottle she just won't do it very often when she is awake.. on the 30th i have another appointment at her pediatrician and if she had gained some weight i can finally breath and not worry about the Tube anymore... so all fingers crossed please!!!!

Nadia is enjoying her Christmas tree very much she could stare at it for hours... i am so excited to celebrate Nadia's first Thanksgiving and X-mas... this Thanksgiving is really special to me because i am truly thankful for how everything turned out ... i did wonder allot of times why this is happening to us...but seeing Nadia smile makes sense to everything we have been threw!

I wish you all a wonderful Thanksgiving

Home Sweet Home

So sorry i didn't update my blog .. my laptop crashed on me the last day at the Hospital...

We came Home yesterday and my little Angel is doing really good... She is such a Fighter so strong!

We were supposed to come Home Monday but Nadia developed a slight fever and we had to do all the blood work and culture tests to rule out an infection!

Everything came back clear and the only thing that was in our way was to place an IV to pull out the RA Line that was placed in her belly... as far as i understood the RA line went around her Heart...so we defiantly needed a working IV just in case Nadia would require a blood transfusion which isn't very common but better safe then sorry...Placing an IV is and always was very hard to do on Nadia....we had 8 different people try there best to place one and each tried at least twice.....it was horrible but we finally had one working IV in her forehead that Nadia pulled out the last day we were there..Ouch i know..but it wasn't the first time she had done that!!!

Besides that our stay at the Hospital was very Positive... sitting here on our couch with Nadia sleeping so peacefully beside me makes the last week look so surreal ...like it never happened!!

Our new Goal is to wean her of that stupid Tube!! I let you know how that goes! ;)

Thanks for stopping by

Right after surgery

Later that Night

Uncle Chris visiting the next day

she wasn't very swollen!

3rd day looking better already

3rd day still very sleepy

4th day back to playing with her favorite toy (yes her tube)

Halloween... most of the nurses were dressed up.. Nadia wasn't sure if she liked it or not :)

Justin wanted her to be Tinker bell for Halloween

Ready to go back Home

Update on Nadia

My little Fighter is doing really good.... her swelling is completely gone and pain has lessened too...no more morphine... well not until they have to take the chest tubes which are coming out tomorrow! By the way ...we are going to the 6th Floor!!! YAY

She played today a little and is eating as well ...more then what she was eating at home!!

We got some special visitors today!!!

The group Rascal Flatts visited all the Vandy Children and handed out gifts for them for Halloween... they personally introduced them selfs to us... they seem really nice..i have to admit i never heard of them until today!!! I know I know shame on me!! Everybody else seemed to know them... they also held a little concert for all the Cancer patient ...so sweet.... i didn't even think about getting a picture with them but we did get a Autograph!

The Vanderbilt Children's Hospital is a great Hospital they truly care about their little Patients! They always make sure there is lots to do for their little ones especially in Holidays like these.. There are bunch of activities going on today until Sunday... Sunday they do a reverse Trick or Treat were they hand out Goodie bags and let the staff go from room to room handing out Toys ( Not Candy )...That is so thoughtful.. i am sure all the kids who understand what Halloween is about will be thrilled!!

Everyone knows how much I hate Hospital food and i really don't understand why most of the food you can grab in a Hospital is a bunch of unhealthy junk like Taco Bell, Pizza Hut & Mac D's .. i think they only should have Healthy Fresh food in a Hospital.. most of people end up in the Hospital because of all their unhealthy food habits!!!

Well anyway......i got a special Treat from my Friend/Cousin in law/ Sister today... she lives all the way in Louisiana but made sure i won't have to eat the same food over and over again!! Which is Subway the only place i actually feel good about eating!!

So she send me a delicious Salad, a Cali croissant, Tortilla soup and a cheesecake(it's ok sometimes) :) from Jason's Cafe enough to feed 10 People... but that's just Rosa!! The more the better right??

Love you & Thank you so much!!

Thanks for all your Prayers i will keep you updated

Happy Birthday to me

I am having the best Birthday ever because my wish came true even a little early.....they extubated Nadia of the Ventilator last night... she needed the nasal cannula for extra oxygen for only few hours afterwords... as for right now is breathing on her own.. she is not much swollen either.. everything looks great..... she is a little irritable from the morphine and the wires but hopefully not for long... if she continues to do so well we will be on the 6 Floor by Saturday!!

God is Good!!!!

4th update...

Dr. Bichell( it is probably spelled wrong) just came out and told us that everything went smoothly and that they didn't experience any complications.. Thank you God

It will probably take a while until we be able to see her!!

Catherine & Becca Thank you for coming with the boys i always love to see them and it really meant allot to me !

Prayers are so powerful ..thank you everyone for praying for my little sweet baby!!

3rd update

We just got another call everything is going well and they just gave her a blood transfusion.. the surgeon should be done in about an hour to hour and a half... keep praying

2nd update

we just got the call that it took them longer then expected to do the pick line and Iv just because her vessels are so tiny, but she is doing fine.. they are starting her incision right about now!

Continue to pray for her now the critical part of the surgery is starting !