Friday, July 2, 2010





We are back in the Hospital


Well... i wish i could make this short and easy and just let you all know how great everything is going... but its not!

The first 3 weeks home were pretty good and even though Nadia was gaining just little by little she was thriving, i thought!
Last week we had a cardiologist appointment .. She had a x.ray done vitals were checked and a EKG ... Her doctor told me that she is hearing a "extra heartbeat" and ordered blood work just to make sure everything is still going good.
At Night they called me to let me know that her potassium is pretty high and that i needed to stop giving her the meds and come back the next day for another blood test.
Poor Nadia.She didn't like it one bit!
That blood test also came back high for potassium.. i was ordered not give her themeds over the weekend which made me really nervous and to come back on Monday for another blood test!!
They had a real though time drawing blood on her on Monday, they tried just about every part of her body arms, leg ,hand, even her head!!! She was exhausted and so was I !! The same day we got a call that everything is looking better and that they want to try to keep her of her meds and see how she does!
Tuesday, just a day later... was not a good day for Nadia... she hardly wanted to eat anything and if she did she was sweating as if she ran a marathon ,slept allot and was quite a bit fussy..her color looked good and her breathing looked comfortable but i still ended up calling the hospital and talked to the doctor on call he wanted me to call the next morning unless i felt she is getting worse.. i called the next morning and they wanted to see her right away.. we had another echo and vitals done ..Since she can't put her back on her old meds due to the high levels of potassium she would have to be admitted in to the hospital in order to monitor her while shes getting the new medicine.

Her Cardiologist came in last night and explained to me that her the irregular heartbeat is just her unique heart beating ..kind of like either having straight hair or curly hair and that it won't become a problem until the irregular beats come back to back....
Nadia's heart is functioning about 40% ( normal for her would be 55%) also that her heart is a bit enlarged.. i didn't like were he was heading with that conversation... He explained real carefully... to not scare me i guess... that if her new meds don't kick in and help her heart function better until her next surgery she would be considered going into heart failure..i was terrified... the only option would be a heart transplant..but i don't want to think that far ahead! She is my little soldier I know she can do this!

I feel like i am in the middle of a bad dream, I want to wake up so badly!!!
I am praying that her new medicine will do the work it needs to do!!

Keep us in your prayer


























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